I was reading one of my favorite blogs today, which you can find at:
http://jessicaturnersblog.blogspot.com/. (Her link button is on the right side of my blog.) A woman wrote her a letter about her 16 month old daughter, Gwendolyn, who is living with a terminal disease known as
SMA. There is a beautiful video clip on her blog that really touched me. I have never heard of
SMA, but I can only imagine what it would be like to know your beautiful child was going to have a life cut tragically short. There is hope though.
There is an important petition to help find a cure for Spinal Muscular Atrophy (
SMA), which is the number one genetic killer of infants. It is currently just a few years away from a cure, and has been labeled "the disease closest to treatment" by the National Institutes of Health. There is landmark legislation, the
SMA Treatment Acceleration Act, currently sitting in Congress that, if passed, would provide researchers the resources needed to make that last crucial step. In addition,
SMA research has already benefited the research of other diseases, such as
ALS/Lou Gehrig's, Parkinson's, Alzheimer's,
Duchenne Muscular Dystrophy,
Tay Sachs, and many others. In fact, it is because so much is known about
SMA that the national organizations consider it a "model" disease from which so much can be learned and put toward saving countless lives. (The bill has nothing to do with stem cell research.) Please take the time to go to the website below and sign the petition. This could be your baby.
http://www.petitiontocuresma.com/